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Dawsons Journey

Raising Awareness for Apert Syndrome

  • dwsjourney
  • Jun 25, 2020
  • 2 min read

Today marks one year since we got Dawsons diagnosis back from Mayo Clinic! We went a whole 3.5 weeks not knowing what our little lamb had. Although, we had done some research (thanks to a NICU NP) and were pretty sure we knew. It was so relieving to finally know for sure! The weight of not knowing for certain was very heavy for us to carry for that long! I’ll never forget the feeling of uncertainty of whether our baby would be with us long or not, we had no clue if this was fatal or not (doctors had told us to prepare not to have him long).. and thank God NOT! He is thriving more than I ever imagined!!❤️ .

Dawson has had quite a year. Full of sickness, hospital stays, lots of pain, surgeries, drs appointments.. sooo many appointments. But through it all, he has taught me sooo much about keeping a smile no matter what you’re going through! It’s so amazing to me how Daws always has a good attitude, giggling and smiling. He’s truly been such a light to our family no matter what we have gone through this past year! Its my goal to learn to be more like him! Apert syndrome doesn’t have anything on us! I truly believe God has worked so many miracles this past year in Dawson, and he continues to! We are so blessed to be gifted this precious boy!

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1 year later, if you don’t have a child that requires a little extra care, you might not understand. But as I woke up this morning and realized what day it was, all I could do was smile and feel so relieved how far we have come! We have climbed some huge mountains this year, and we will climb many more. But without those there’s no growth into a better person. It’s a very emotional road, but a rewarding one! So thankful for all the prayers that have went into our little boy and for us! Jesus has been good to us!



 
 
 
  • dwsjourney
  • May 31, 2020
  • 1 min read

Our baby turned ONE today!

This year has been one of the longest years of my life. As parents, very tolling in every way possible. But we have risen to every hardship and fought each day to give this little man the best life we could possibly offer him! We are so blessed with this bundle of joy! No matter how hard the day or much pain he’s in, he always has a smile for us and makes us laugh daily! He has wiggled into our hearts in more ways than I even knew was possible!


He has overcome every obstacle thrown at him this year and is far exceeding the expectations we were given in the beginning! It is amazing to look at the monthly pictures all the way back to his birth date... I had a few in there I missed getting with lil lamb, but you can still tell how well he has grown.


Eating is his favorite thing to do, and it shows!😂 May we continue to offer him the best joyful life we know how! 🎂 HAPPY Birthday my dear boy! We love you more and more each day! A party will come after the casts are off!

Order is birth - now!



 
 
 
  • dwsjourney
  • May 22, 2020
  • 1 min read

Little man is doing MUCH better than last recovery! He’s a little uncomfortable, which is to be expected! A few spells of tachycardia and desats, which happens at times with high pain. But it isn’t anything the meds aren’t handling so far, for which we are very grateful! He’s resting and eating well, and we will head home tomorrow as long as he continues to do great! It’s rough on mom and dad not being able to both be up here, but we are making it work! Big thanks to all of you who have reached out with encouragement and prayers! They’re working! #prayerchangesthings #apertsyndromewarrior




 
 
 
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