1 year diagnosis.
- dwsjourney
- Jun 25, 2020
- 2 min read
Today marks one year since we got Dawsons diagnosis back from Mayo Clinic! We went a whole 3.5 weeks not knowing what our little lamb had. Although, we had done some research (thanks to a NICU NP) and were pretty sure we knew. It was so relieving to finally know for sure! The weight of not knowing for certain was very heavy for us to carry for that long! I’ll never forget the feeling of uncertainty of whether our baby would be with us long or not, we had no clue if this was fatal or not (doctors had told us to prepare not to have him long).. and thank God NOT! He is thriving more than I ever imagined!!❤️ .
Dawson has had quite a year. Full of sickness, hospital stays, lots of pain, surgeries, drs appointments.. sooo many appointments. But through it all, he has taught me sooo much about keeping a smile no matter what you’re going through! It’s so amazing to me how Daws always has a good attitude, giggling and smiling. He’s truly been such a light to our family no matter what we have gone through this past year! Its my goal to learn to be more like him! Apert syndrome doesn’t have anything on us! I truly believe God has worked so many miracles this past year in Dawson, and he continues to! We are so blessed to be gifted this precious boy!
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1 year later, if you don’t have a child that requires a little extra care, you might not understand. But as I woke up this morning and realized what day it was, all I could do was smile and feel so relieved how far we have come! We have climbed some huge mountains this year, and we will climb many more. But without those there’s no growth into a better person. It’s a very emotional road, but a rewarding one! So thankful for all the prayers that have went into our little boy and for us! Jesus has been good to us!
#apertsyndrome #mayoclinic #smile #baby #special #growthmindset #positivemindset #love #peaceinthestorm
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