1st Syndactyly release
- dwsjourney
- Feb 21, 2020
- 2 min read
Here’s an update, long overdue! A week ago today, Dawson woke up a new little boy. He doesn’t realize it yet, because he is casted; But he now has fingers and toes! The casts will come off next week.
Daws had the first stage of syndactyly release, and we will be doing the second stage in May. The first stage releases half of the digits. The reason for this is, when making the cuts and then grafting, there just isn’t enough room to work with if they were to try and do all of them at the same time. So they do half at a time! They make large cuts in the creases of his groin/legs to take the grafting skin from, and they then glue those shut for healing, thankfully those are doing well! We are pretty excited about the end result of all of this!
In the meantime, during the process of coming home and him beginning to heal this week, Dawson ended up having a few secondary complications which we just discovered what were. He has been in extreme discomfort and not able to soothe much,not sleeping well at night at all and refusing to eat near as much as he should be. Unfortunately, we now know, he has a UTI, an ear infection that is retaining fluid and then thrush. The poor baby got blasted with all the things at once! Thank goodness for an amazing pediatrician who stayed 2 hours after the clinic was closed trying to figure out what was going on! We are very blessed in the Doctor department!
All that being said, Daws has a few mountains ahead of him in life, but we will always fight our hardest to get him the best doctors possible and that will make sure he will have the most optimal outcomes possible! It still amazes me what all they can do to for our little Apert babies!
A huge thanks to my mom and Auntie Debbie for being there with us through the surgery and then after! Thanks to all of you who have reached out, brought over gifts, said prayers and made sure we knew we are not alone during this difficult time through surgeries. We feel the support and love!
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