FOA

I have had a very hard time putting this post into words.... this week has been a roller coaster for me/us. A few have asked for reminder on dates and times. (We really aren’t super popular, just have some amazing friends who care!😂) anyhow, here’s a summery!

This is the last night Dawson goes to sleep with an uncut head. It’s hitting harder than I imagined. I couldn’t help but take a few pics of his precious sleeping face!😍

We have been here in Dallas since Wednesday morning and will be here until at least Sunday.

Wednesday Dawson had covid testing and pre-op paperwork.

Today we had a sedated MRI, bloodwork, many phone call confirmations, Cranio team consults including anesthesia, Dr. Fearon and finally meeting Neurosurgeon - Dr. Succo for the first time and then yes, more paperwork.. I can’t even begin to explain how many papers I have had to read and sign the last few days🙈😂

CVR was explained fully to us today on what Dr. F process is and which stage will come first. Daws has both bilateral coronal craniosynostosis which is rare, making up about 5-10% of cases and affect the front of the skull. As well as, right lambdoid synostosis, which is the rarest form, but is generally syndromic, such as with Apert syndrome; and it affects the bottom part of the skull.

Tomorrow, Daws will be having what’s called a Fronto-orbital advancement (FOA). It’s a surgical procedure used to reshape and reposition the bones of the forehead and the eye sockets. The whole process will last around 6 hours (from arrival to PICU recovery) and will begin at 6:00am 7/31. This surgery is the most dangerous surgery Dawson has, but it’s also the most important and we’re so grateful to have found this team, he is in the best surgeons hands!! Please keep Dawson in your prayers that he will come through better than even expected, and us parents as we face this day. It’s been hard. There has been a few breakdowns. But I know God has blessed us already with him, and I’m trusting He will do so much more! I’m so grateful for my family and how much they are helping us during this time trying to lighten our stress load! Also, so grateful to everyone who has been praying and messaging!