Dr. Fearon visit

Update on the visit with our Apert specialist and plastic surgeon, Dr. Fearon. He comes highly recommended and the other Apert families can’t say enough about how amazing he is with our littles! He is up in the top best surgeons for Aperts in the country and we’re so very blessed to be able to have him!

I will begin by saying, Dr. Fearon took my stress level from 100 to 25 immediately... haha! We’re so relieved with the biggest statement he gave us, and that is to “offer him the most normal life possible, treat him like you would any other baby!” I’m still major picky about babies and germs etc, but I’m super excited to start adjusting a few things and being a bit more normal!

We will be starting the first 3 surgeries in March 2020 if all goes as planned. A little different from what other moms have said to me and blogs I’ve read etc, Dr. Fearon is what I am referring to as a “minimal surgeon”, in comparison to what many Apert families have to go through, of which we are so thankful! He will be releasing all fingers and toes on one side, then the other set on the other side 3 months later, as long as the cranial surgery can wait until the end. We will be measuring and watching to be sure pressure doesn’t began to build until then.

Dawson has been struggling immensely with breathing, especially since he had Rhino virus diagnosis(acts the same as RSV), his retractions are quite deep a Lot of the time. He is still on much needed oxygen and then the monitors as well (we’re trying to get these off).

We will be doing a sleep study in the next week or so to see what all is going on and if we will possibly need a trach, which we’re praying is not needed, but it may be necessary for him to be able to breath more efficiently and not cause harm to his brain for lack of proper oxygen. Dr. Fearon also let us know that the use of an inhaler and nebulizer is common in Apert babies since they tend to have RAD (Reactive Airway Disease), which Dawson has. We’re so thankful that we have found something that has helped!

Daws is really growing and doing well! He’s 12lb5oz and is now in 3m clothes! He has found his tongue as well as started to coo at us; It is so stinking cute! He’s VERY spoiled and loves to be held a minimum of 15 hours per day LOL! As of this week, he learned he has little hands (we call them paws) .. and is starting to suck on them when he thinks he’s starving haha!😍He’s drinking about 4oz every 4 hours and sometimes thinks he needs more!😂

We are so blessed with a handful of nurses and he is getting the best care possible! A huge THANK YOU to our ladies that help keep him healthy and happy!

Life is crazy busy, but we will always do our best to update as soon as we can, when there is a change of any sort, as well as milestones etc!:) We as a family are learning our new “normal” and trying to find a bit of all in all the chaos, so please bear with us through the quiet times!:)

Thank you for following along and we appreciate all of the thoughts and prayers sent our way!